When it comes to food
allergens, there are apparently over 300 different symptoms that can indicate
an intolerance of any one of them. This explains why at first it's so tough to
diagnose the little buggers.
Everyone's story is different when it comes to symptoms, so I'll give you a run-through of mine.
Around two years ago, I first went to my GP (then in Southampton where I was at uni) complaining of extreme lethargy, brain fog, migraines, general aching and not feeling 'right'. My mum was diagnosed with under-active thyroid a few years ago, so immediately this was the doctor's concern for me. Blood tests came and went - several times - and nothing flared up on the thyroid front. It was clear that if it wasn't thyroid, my doctors had no real interest in investigating any further and blamed it on all my partying at uni. I wasn't a crazy party girl, so to me this was complete bull, and just an easy way for them to sweep a student patient under the rug for a while. I visited doctors on maybe four occasions for the same problems over and over again. No thyroid, no problem.
When I moved back to London in January, I went and saw my new GP after feeling gradually worse from around November of last year. I also found myself experiencing really strange moodswings, something that I never really suffered from. One day I would be super happy and excited and the next I could have three consecutive days of feeling sad, crying or desperately wanting to for no reason, and just feeling majorly down in the dumps. I explained to my doctor that I was in a pretty hectic job (some days I was working 19/20 hours), but that my tiredness and other symptoms had been something going on for a long time. I didn't even think to mention my mood, as I assumed it was because of the stress from work. After realising that my mum suffered from thyroid, he immediately said that he wanted to check mine out; I told him that I'd been tested several times and that it had been ruled out, but he explained to me that under-active thyroids drop gradually, and just because it appeared 'normal' on tests, didn't mean it wasn't worsening. I was put in for more tests and once again, no thyroid worries. I was however, anaemic.
The anaemia was a big surprise for me. I've always been quite tanned, no matter what time of year, and I just put my slightly paler-than-usual skin tone down to lack of sun and being cooped up in an office all the time. By this time I'd left my job; there were multiple reasons but I found my health deteriorating, and to put it bluntly, I was my number one priority. I went back to the doctors after finishing the course of iron tablets that I was prescribed, and was given an appointment with another doctor - my family doctor, funnily enough - who pointed out a vitamin D deficiency as well. I was sent away with a supplement on top. I decided as vitamin D equals sun, I needed a holiday right?
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The infamous 'Gluten Baby' |
I went to visit some family in Spain. I laid in the sun every day and slept most of the time. I didn't tan like I usually did, and went a funny grey colour. I hated it because everyone I saw made a comment about how white my skin looked in comparison to normal, and asked if I was okay. At this stage, I started to notice that despite how healthy my diet was (I actually cut out goodies etc in an attempt to see if it made any difference), that I was gaining weight at an alarming rate when I shouldn't have been, and it took longer than usual for bloating to go away after meals and so on. I actually laughed at the fact that a guy once offered me his seat on the tube thinking that I was pregnant. On top of that, everything in the digestive department wasn't so hunky dory and hadn't been for some time; it went from one extreme to the other. I didn't make any connection at the time.
Whilst I was away - I was with my mum - my mum noticed that I was waking up with large bruises across my body and asked what was going on. I told her I'd been getting them for a while but I must've just been accidentally hitting myself whilst I was asleep or just being clumsy without realising. She saw a rash on my feet as well, and I told her I was getting these 'heat rashes' regularly too. I think it was at this stage that she began to worry.
My friend's mum was diagnosed with a couple of food intolerances around that time, one of which was wheat, and as much as I knew what wheat was, I didn't really get it all. I did what all nosey people do, I took to the internet and thought I could maybe offer some food ideas or something for her once I understood a bit more. I ended up being directed to a page about gluten, gluten intolerance and Coeliac disease, where there was a list of symptoms. Out of nearly twenty symptoms, there were only three on that specific list that I didn't end up checking off. It was time to go back to the doctors.
I felt that if I went to my family doctor again he may be able to help a bit more as he knows my family's background. Disclaimer: he didn't, and he was useless. He had no interest in helping me out, and I ended up going back over to Spain to pay for an over-the-counter test in a pharmacy in a little village (that's the NHS for ya, ladies and gentlemen!), and as you know, the rest was history.
In hindsight, it took two years, minimum, for this to be diagnosed. Thinking about it even further back than that, my diagnosis answers a lot of questions that doctors couldn't answer before. For example, last summer I was hospitalised in Spain for an allergic reaction to liquorice (one of its main ingredients being gluten - HELLOOOOOO!), and when I was asked if I had Coeliac then, I said no. But of course, I didn't know at the time. But it just goes to show!
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One of the itchy rashes that appeared mid-reaction |
It can take years for Coeliac, gluten intolerance or other food allergies to finally be detected, which is why it's super important to keep an eye on your health and if anything doesn't feel right, go to your GP. If your GP says there's nothing wrong, only you know your body; you're entitled to speak to them and tell them what your body is telling you. Here are some of the symptoms that I encountered at different stages before my diagnosis, and some still creep back in if I'm accidentally gluten-ed or eat something that's been cross contaminated:
- Extreme lethargy
- Aches and pains in muscles and joints
- Migraines
- Brain fog and confusion
- Moodswings (uncharacteristic)
- Anaemia
- Vitamin deficiency
- Tooth discolouration (I had a single tooth that confused dentists for discolouring with no explanation)
- Weight gain (although most Coeliac sufferers actually suffer from weight loss)
- Bruises
- Stomach pain
- Constipation
- Diarrhoea
- Extreme bloating (aka Gluten Baby)
- Hair loss
- Rashes
- Extremely dry skin
- Numbness and pins and needles in hands and feet multiple times a day
- Mouth ulcers
- 'Chicken skin' (slightly bumpy and red skin on the backs of the arms)
Remember, these are only just a few of the possible symptoms. Trust your body and if it gives you any of the following on a near daily basis for a prolonged period, make sure you check it out. I promise you, diagnosis is the first step to feeling better again... Finally!